Dr. Lucia Monaco

Chair, International Rare Diseases Research Consortium Assembly

Dr. Anne R. Pariser

Director, Office of Rare Diseases Research, National Center for Advancing Translational Sciences, NIH

Dr. Ben Solomon

Clinical Director, National Human Genome Research Institute, NIH

Durhane Wong-Rieger

Chair, Rare Diseases International; President and CEO, Canadian Organization for Rare Disorders

Gareth Baynam

Clinical Professor, Faculty of Medicine and Health Sciences, University of Western Australia

Linda Goler Blount

President and CEO, Black Women’s Health Imperative

Aaron Friedman

Senior Regulatory Counsel, Office of Orphan Products Development, FDA

Melissa Haendel

Chief Research Informatics Officer, University of Colorado Anschutz; Director, National Center for Data to Health

Ritu Jain

President, Asia Pacific Alliance of Rare Disease Organisations

Daria Julkowska

Assistant Director, Thematic Institute of Genetics, Genomics & Bioinformatics, INSERM, France; Coordinator, European Joint Programme on Rare Diseases

Yann Le Cam

Chief Executive Officer, EURORDIS-Rare Diseases Europe

Daniel Lewi

Chief Executive, The CATS Foundation

Suyash Shringarpure

Senior Scientist and Statistical Geneticist, 23andMe

Rebecca Stewart

CEO, NRG Collective Ltd./RARE Revolution Magazine

Samuel Agyei Wiafe

Executive Director, Rare Disease Ghana Initiative; Senior Clinical Psychologist, Ga East Municipal Hospital