Sarita Edwards is CEO & President at the E.WE Foundation, a global healthcare advocacy organization. She began her efforts of advocacy and public policy after her 5th child, Elijah was diagnosed in utero with a rare disease named Edwards Syndrome (Complete Trisomy 18). Sarita is recognized as a 2021 world’s top patient expert and social health ambassador. She is an award-winning advocate and host of the Being Rare Podcast. Sarita serves on executive boards and advisory councils within her home state of Alabama and across the country. She is a rare disease legislative advocate and community congress member providing advice and insight on urgent policy initiatives. She is a member of multiple coalitions and an active participant in workgroups on health equity and diversity empowerment. Sarita has a Bachelor of Science is Health Science, a Masters in Healthcare Administration, and is a nationally certified Mental Health First Aid Instructor. Sarita lives in North Alabama with her husband Kareem and their five children

Edwards briefed National Press Foundation fellows in November 2023: Connecting Biotech and the Social Determinants of Health. She also briefed journalists in February 2025: Why Newborn Screenings and Rare Disease Coverage Matter. She also briefed NPF fellows in November 2025: Storytelling Impacts Disease Research, Policy and Perception. Check out the Rare Disease Reporting Guide.