Dunyoh briefed National Press Foundation fellows in November 2023: Connecting Biotech and the Social Determinants of Health. 

Sika Dunyoh is a Director of Patient Advocacy at Travere Therapeutics. In her role, she is responsible for developing and maintaining meaningful relationships with patient advocacy organizations and the communities they serve. Additionally, Sika is leading the development of initiatives to address diversity, equity and inclusion in the rare disease community.

Before joining Travere, Sika was the Director of Education Programs at the National Organization for Rare Disorders, where she developed and managed programs designed to educate patients and caregivers, healthcare professionals and students pursuing careers in healthcare. These programs included NORD’s annual Rare Diseases and Orphan Products Breakthrough Summit.

Prior to NORD, Sika spent almost 15 years developing marketing strategies for scientific societies and developing engaging educational resources for scientific, technical and medical (STM) professionals and researchers.

In 2015, Sika launched Shine Light on Rare Diseases, an awareness initiative she established in memory of her sister, Carolyn, who passed away from complications of relapsing polychondritis, a rare autoimmune disease. The goal of Shine Light on Rare Diseases was to highlight the prevalence of rare diseases and to help people with rare diseases receive faster diagnoses to save and improve the quality of their lives.