Stewart briefed National Press Foundation fellows in September 2021: Covering Rare Diseases with Sensitivity.

Rebecca Stewart is the Co-founder of NRG Collective, home of the dedicated rare disease publication RARE Revolution Magazine, the youth program #RAREYouthRevolution and RARE Communication, a specialist niche community communication company. She is also co-founder and trustee of the International charity Teddington Trust an organization, founded in 2012 to support those affected by the Ultra-Rare Disease Xeroderma Pigmentosum.

Passionate about appropriate and accessible resources, Rebecca and her co-founder across all organizations Nicola Miller, work to provide a platform for the whole rare disease community and are dedicated to supporting and signposting patients.