Philip is the Founder and Chairperson of the Motor Neuron Disease Association of Kenya (MNDAK). He became an advocate after several close family members lived with Motor Neuron Disease, revealing major gaps in diagnosis, psychological support, and care pathways in Kenya and, by extension, Africa. His work focuses on raising awareness, strengthening caregiver networks, and encouraging policy attention to neurological and other rare, often invisible, conditions.

Philip brings a grounded caregiver perspective to conversations on rare disease and mental well-being. He is documenting this journey in “The State of ALS/MND in Kenya: Challenges and Catalytic Opportunities from a Caregiver’s Perspective,” prepared for presentation at the International Alliance Meeting in Toronto, Canada, in November 2025. His work highlights how cultural beliefs, fragmented referral systems, and limited clinical capacity deepen the strain on families, while also identifying practical, community-based solutions.

Now retired from public service, Philip served more than thirty years in Kenya’s Ministry of Agriculture & Livestock Development, where he worked in leadership, training, and community development across diverse regions. That background strengthened his understanding of how systems function and how advocacy can transform hardship into meaningful change.

Langat briefed National Press Foundation fellows in November 2025: Capturing the Mental Health Toll of Rare Diseases. Check out the Rare Disease Reporting Guide.