Mutena briefed National Press Foundation fellows in October 2022: Empowering Rare Disease Patients Through Advocacy and Counseling. 

Christine Mutena is a mother to two children, both with non-related rare genetic conditions. She is a special needs advocate as well as a rare disease advocate and the co-founder of Rare Disease Kenya, an organisation that creates awareness on rare diseases in Kenya more so through the Rare Disease Day campaign, Kenyan Chapter. She is also the founder of Step by Stones Association, an organisation that offers a support platform for parents of children with special needs and/or rare diseases which seeks to provide a haven for them to share, ask, and most importantly feel like they are not alone. It is not geared to any specific disability; neither is it prohibitive to parents only.