Yamina Hsaini is a 26-year-old French patient advocate and content creator. She has been living with rare chronic diseases since the age of 14, including severe gastroparesis. After years of misdiagnosis, she began sharing her story on social media around 2016 to raise awareness about her conditions with authenticity, inspire others, and make rare diseases more visible. Yamina received the 2025 EURORDIS Black Pearl Social Media Award for her advocacy work.

Yamina briefed National Press Foundation fellows in November 2025: The Power of Youth Advocacy for Rare Disease Patients and Families. Check out the Rare Disease Reporting Guide.