Halley briefed National Press Foundation fellows in October 2022: Rare Disease Through the Ethics and Equity Lens. 

Meghan Halley, Ph.D., MPH, is a Senior Research Scholar in the Center for Biomedical Ethics at Stanford University. She completed her doctorate in medical anthropology from Case Western Reserve University in 2012, and additional training in health services research at the Palo Alto Medical Foundation Research Institute from 2012 through 2016. Her current research focuses at the intersection of the ethics and economics of new genomic technologies. Her current projects include examining ethical issues related to sustainability and governance of patient data and relationships when large clinical genomic studies transition to new models of funding; ethnographic work exploring how diverse stakeholders perceive value in the use of genome sequencing for the diagnosis of rare diseases; and the development of new measures for assessing patient-centered outcomes in pediatric rare diseases.